Monday, December 15, 2025

Will This Happen to Me Too?

Will This Happen to Me Too?

Why Dementia Numbers Are Rising — and Why Fear Is Not the Answer

By Ellen Samson - Dementia Speaker

At some point, almost every caregiver asks this quietly:

“My mother has dementia. Does that mean I will have it too?”
“My father is declining. Is this where my life is headed?”

I hear these questions again and again — in my inbox, in comments, in private messages, and during conversations on the Dear Ellen Podcast.

Recently, a report shared by Smithsonian Magazine, based on a major study published in Nature Medicine, brought this fear back into the spotlight. The projection says that by 2060, up to one million people in the U.S. may be diagnosed with dementia each year.

That headline alone is enough to stop anyone in their tracks.

But numbers without context create panic. And panic does not help families care better. Understanding does.


What the Smithsonian Report Really Means

Let’s slow this down.

The rise in dementia cases is happening largely because people are living longer. Dementia risk increases with age — so as more people reach their 80s, 90s, and beyond, more individuals will naturally experience some form of cognitive decline.

This does not mean dementia is guaranteed.
It does not mean everyone will reach a severe stage.
It does not mean families should feel helpless.

The study discusses lifetime risk — meaning across many decades. Many people counted in that projection will live independently for years, with mild symptoms that never progress the way families fear.


Dementia Is Not One Story

Something I always remind families — and something the Smithsonian article reinforces — is that dementia is not one disease.

  • Alzheimer’s is the most common type, but not the only one.

  • Some dementias affect behavior first.

  • Some affect judgment.

  • Some move slowly.

  • Some fluctuate.

When families hear the word “dementia,” they often imagine the worst-case scenario immediately. That fear can prevent them from learning, planning, and seeking support early.

And early understanding matters.


Risk Is Not Destiny

Yes, age increases risk.
Yes, genetics can play a role.

But risk is not destiny.

Doctors and researchers agree — and I repeat it often on the Dear Ellen Podcast — that:

The same things that protect your heart also protect your brain.

  • Managing blood pressure

  • Controlling blood sugar

  • Getting enough sleep

  • Staying physically active

  • Keeping the mind engaged

  • Staying socially connected

These habits don’t promise immunity, but they can reduce risk and slow decline.
That’s not false hope.
That’s realistic, practical care.


Why I Do This Work

This is exactly why I created the Dear Ellen Podcast and the Dementia: Up Close and Personal Community Workshops.

Not to scare people. Not to overwhelm families with medical jargon.

But to talk about dementia the way it actually shows up in real life — inside homes, marriages, families, and caregiving relationships.

We talk about:

  • behaviors that confuse families

  • guilt and burnout caregivers rarely say out loud

  • planning before crisis hits

  • boundaries, support, and realistic expectations

Dementia is not just a medical diagnosis.
It is a family experience.
And families deserve guidance that feels human, compassionate, and clear — not clinical and cold.


The Bigger Picture

Dementia cases are rising, yes — Smithsonian reported that clearly.

But dementia is not inevitable, and it is not the end of dignity, connection, or meaning.

What makes the biggest difference is not only medication.

It’s preparation.
It’s education.
It’s support.
It’s honest conversations early, not when families are already exhausted.


Final Thought

Fear should never be the plan.

Understanding gives families steadier ground.
Preparation gives them choices.
Community reminds them they are not alone.

That is the heart of the Dear Ellen Podcast.
That is the purpose of Dementia: Up Close and Personal.
And that is why these conversations matter — now more than ever.


Source:
Smithsonian Magazine, “U.S. Dementia Cases Are Poised to Rise to One Million Each Year by 2060,” January 2025.

Ellen Samson Dementia Speaker

Monday, December 1, 2025

Will I Get Dementia Too?

Will I Get Dementia Too? The New Blood Tests Revealing Risk and What Families Can Do With the Results
By Ellen Samson — Dementia Speaker

Have you ever wondered whether you might develop dementia someday, especially if a parent or grandparent has it?

For many people, the fear does not come from statistics.
It comes from experience.


You have seen the confusion.
You have seen the decline.
You have seen how caregiving transforms daily life, roles, and relationships.

For years, there was no clear way to know your own risk. Families lived with uncertainty, guessing, hoping, and preparing for the worst. Today, that landscape is beginning to change.

New Alzheimer’s blood tests can detect biological changes years before symptoms appear. These tests are already being used in major healthcare systems, and they are quietly reshaping early detection.

They are not crystal balls.
They are not cures.
But they offer something families have never truly had before:

clarity, direction, and the ability to plan ahead.


Why People Want to Know Their Risk

Anyone who has cared for a loved one with dementia understands how emotional and overwhelming the journey can be. The questions families ask are grounded in personal experience:

  • “Will this happen to me?”

  • “Should I find out early?”

  • “If I knew, could I better prepare my family?”

Until recently, answers required PET scans, spinal taps, or waiting until symptoms became obvious. Blood tests have changed that reality.


What These Blood Tests Measure

These tests detect specific biomarkers associated with Alzheimer’s disease, including:

  • pTau 217

  • pTau 181

  • Amyloid beta 42/40 ratio

  • Neurofilament light chain

These markers reflect changes happening in the brain long before noticeable memory problems. Research shows some of these tests can reach accuracy levels similar to PET scans.

They do not replace a doctor.
They are tools that open the door to earlier conversations and earlier planning.


Where These Tests Are Available

AD Detect (Quest Diagnostics)

A consumer-direct test measuring pTau 217, a highly sensitive Alzheimer’s marker.
Order online: https://www.questhealth.com/product/ad-detect

PrecivityAD (C2N Diagnostics)

A physician-ordered test that analyzes the amyloid beta 42/40 ratio and genetic factors. It provides a probability score for Alzheimer’s disease.
More information: https://precivityad.com

Labcorp ATN Profile

A physician-ordered panel that evaluates amyloid, tau, and neurodegeneration. It is commonly used in memory clinics for greater diagnostic clarity.
More information: https://www.labcorp.com/tests/atn


Who Should Consider Getting Tested

These tests may be useful for adults who are:

  • Noticing mild memory changes

  • Worried because of family history

  • Experiencing early onset symptoms

  • Seeking diagnostic direction

  • Unable to access PET scans

  • Preparing for long-term planning and decision-making

They can also assist physicians who want additional data before making a formal diagnosis.


What These Tests Do Not Tell You

A blood test cannot tell you:

  • When symptoms will begin

  • How quickly the disease will progress

  • What daily care will look like

A positive biomarker result answers one question:

“Is Alzheimer’s biology present?”

Everything that follows requires thoughtful guidance, including:

  • Safety changes at home

  • Division of responsibilities

  • Support for caregivers

  • Management of routines and behaviors

  • Financial and legal planning

  • Ways to maintain connection and quality of life

Many families receive a diagnosis and are left feeling overwhelmed. This is the gap that must be filled.


Why Every Family Needs a Care Roadmap

A diagnosis is only the beginning.
The caregiving journey is where the real challenges emerge.

As a Geriatric Care Manager and Family Dynamics Coach, I help families:

  • Identify the true stage of dementia

  • Anticipate the next 6 to 12 months

  • Build routines that protect the caregiver’s health

  • Strengthen communication within the family

  • Reduce crises and avoid unnecessary hospitalizations

  • Improve the patient’s daily quality of life

No two families are the same.
No two progressions follow the same path.

A generic plan cannot meet the real needs of a family facing dementia.

A personalized roadmap brings stability, clarity, and a sense of control at a time when everything feels uncertain.


Final Thoughts

Alzheimer’s blood tests are one of the most meaningful breakthroughs in early detection. They give families something priceless: time.

Time to plan.
Time to prepare.
Time to protect what matters most.

Knowledge is the first step.
Planning is the second.

If you are considering biomarker testing or you already have results and need guidance on what comes next, you can schedule a Care Roadmapping Session at ellensamson.com.

Together, we can create a plan that supports your loved one while protecting the health, stability, and well-being of your entire family.

Will This Happen to Me Too?

Will This Happen to Me Too? Why Dementia Numbers Are Rising — and Why Fear Is Not the Answer By Ellen Samson - Dementia Speaker At some p...